After watching the video, do you have any concerns about data privacy and DNA?
Answers will vary but some concerns that may arise include:
Genetic discrimination: Employers, insurance companies, or others could potentially access DNA information and make decisions based on an individual’s genetic predispositions or health risks.
Consent and control: Privacy concerns also arise from lack of transparency in consent processes and control over how DNA data is used. People may feel uncertain about the extent to which their genetic information is protected and whether they have the ability to revoke consent or delete their data entirely. There are also control issues given that you don’t need to share your own DNA to have it traced through a relative.
Law enforcement access: Some genealogy platforms have been involved in assisting law enforcement agencies in solving cold cases or identifying suspects through DNA matches. While this can be seen as positive, it raises privacy implications and the potential for genetic surveillance.